Monday, September 9, 2013

Busy, Busy, Busy

So it's been awhile since I've updated my blog. Actually its been like 8 months. We have been super busy, with life that I haven't had hardly anytime for myself. Kaylin had her surgery in May. Surgery was very successful. We did have some complications after her surgery though. She was in a cast for 8 weeks, well it was supposed to be 8 weeks, but Kaylin had other plans. She pulled her cast off 6 weeks early! So her heal pad is a bit shifted on the bottom on her stumpy. But her doctor doesn't think it will be a problem right now. She received her prosthetic leg about 2 weeks ago. So far she hates it. We encourage her to wear it for a couple hours a day, but she still hasn't bonded with it yet. Actually, she is terrified of it. The moment we bring it out she starts screaming. I've been a little discouraged, but trying to give her the time she needs. I think she may feel that her prosthetic gets in the way of her being mobile. The reason why I feel this way is because she uses her stumpy to her advantage to get around. She can scoot across a room just as fast as I can walk. She will eventually understand it's purpose. But until then I feel like I am tourching her by making her wear it.

I also just recently quit my job of 8 years, to stay at home with my kids, and go back to school. We had been working 7 days a week for years now. It finally wore me out enough, to stay enough is enough. My kids need me more. Not only do I get to see my kids more and actually have more energy to interact with them, I have time for myself and my husband. :)


We also just recently had her 1st birthday party. I wanted to wait till she was completely healed from her surgery. We had all kinds of family come in town to celebrate my baby girl. It was a good time. Thankyou to everyone who was able to make it.

Kaylin before surgery



Kaylin after surgery





Cast Removal Day- HAPPY BABY!



First Fitting!!! :)




Happy baby = Happy mommy



Party Time!!!

Sunday, January 6, 2013

Goodbye 2012, Hello 2013!

God blessed me with so many wonderful experiences in 2012, can't wait to see what he has in store for us in 2013. Our family was blessed with a beautiful baby girl this year. Kaylin is growing so much everyday. I'm excited to bring on the new year. But also very nervous. Only 4 more months till Kaylin's surgery. I know deep down, she will be just fine. Afterall, she is a patient with some of the best pediatric surgeons. But sometimes I can't help to worry alittle. One of my good friends at work, got me to start watching Joyce Meyers. The first sermon of hers I watched was amazing. It was just what I needed to hear. She was talking about "Faith", and how we have faith everyday in our lives and just don't realize it.. For instance she said as a example.. she had a chair and sat in it.. "you have faith the chair is going to hold you weight.. and you trust it will."  I need to have faith in God that he will take care of our little girl, and stop worrying about it so much. He will help my husband and I make the right choices for Kaylin. If you would like to check out some of Joyce Meyers sermons, there are some on youtube.com, or check you cable for TBN channel.

Friday, November 2, 2012

Kaylin's 2nd Shriners Appointment

Our baby girl is 6 months old. Today she had her 2nd appointment with Shriners. It started as a very nervous and scaring day. And ended into a very relaxing, and heart warming day. My husband and I decided on amputation for her right leg. Doctors seem to agree that this is the best and hardest choice we will ever have to make in our life. We sheduled her surgery, and sheduled a follow up checkup right before her surgery to evaluate one more time. Her left leg, we are going to leave untouch for the moment. In her left leg she has her entire fibula bone!! It is just malformed.. which could cause her problems later on, but it is too early to tell.

The best part of our day today was we got to meet other families that have already been through this journey. First we met a young 10 yr old girl, who has her right leg amputated. She was telling us all the different sports she plays.. basketball (her favorite :)  ), soccer, softball, etc. She had so much personality for a 10 yr old. She told us how she loves her leg, especially when wrestling with her dad, she uses it to her advantage :)...  Secondly, we met a young lady with a prostheic, who is closer to our age.  This young lady is one of the most strong, caring, greatful, independant people I've ever met. She had more confidence in herself than I have in myself. I hope Kaylin will have just as much determination as her. Her and her mother were extremely helpful and answered all my questions, and reassured all my doubts. And did you know there is a prothesic leg were you can wear high heels?? yup, thats right, my baby girl will get to strut in those high heels one day :) This met and greet, was by far the best. Her and her family had so much personality, that I felt comfortable to ask anything.

Sunday, October 21, 2012

Kaylin Rose is 5 months old!! She is growing to fast for us. She loves playing with rattles, smiling, babbling, and loves to be tickled :) Her favorite movie is "Happy Feet!"   She will sit and watch the whole movie, and laughs most of the time during the movie. Tonight we watched "The Lorax" together, and she loved it just as much.. So I think we are going to ask Santa for it. :) This weekend my husband and I both taken off from work, and we went pumpkin picking, carved & painted pumpkins, and had a pizza and movie night. So far it has been a very relaxing weekend for us. 




Kaylin's next Shriners appointment is in a couple weeks. We will get to see how much her little legs have developed since she was 8 weeks old! We will also get to meet two families with children older that also have Fibular Hemimelia. I'm very excited, but also nervous. I'm so ready to learn and see what the outcome could be for my sweet Kaylin.

Thursday, August 23, 2012

4 months old

Kaylin is almost 4 months old. She is growing so fast. She is doing very well. Always laughing, smiling, and talking. We are so blessed to have her in our lives. I thank God for her everyday. I also would like to thank everyone else that has been here supporting us. Wether you are following this blog, asking how she is doing, or sharing familiar stories. It all means so much to us. I used to break down from time to time. But that doesn't happen anymore. And it really is because of all the supporters we have! So thank-you, each and everyone of you.

I know God created her this way for a reason. He knew what he was doing. God gave her a amazing brother, he amazes me how much love he has for her already. I hope he will always be her protector. Kaylin got accepted into Shriners, one of the best children's hospital. Everything is just falling right into place, the way it should. Kaylin has already changed us in so many ways already. Little things that you didn't appreciate before, you do now. I notice myself being more carefree, and not worrying about what negative people say or think. She is so special, and beautiful.
Ever since Kaylin was born.. I have wrote her a letter every month for her baby book. I want her to know everything in this journey.



                                                                   Kaylin-- 4 months

Sunday, July 29, 2012

3 months old!

                                                              Kaylin-- 3 months old!

Kaylin is now 3 months old! Time seems to be slipping away to fast. It's feels just like yesterday I was in tons of pain having her. She is a very happy baby. Always smiling, cooing, and laughing. She has so much personality already. While we do have our challanges ahead of us, I do believe with God by her side she will have enough will-power to get through this. Her next Shriners appointment is in Nov, then we will shedule her surgery. My husband and I have decided amputation for her right leg is the best option for us, and Kaylin. We want her to have the ability to accomplish anything she wants to in life. And amputation for a prothestic leg, will give her the mobility to do so. While we are happy with our decision it still weighs heavy on our hearts. I know Kaylin will understand. In the meantime I have been documenting everything for her.

Friday, July 6, 2012

2 Months Old!

My sweet baby girl is two months old today. She has been completeing every milestone, just as every other baby. She smiles all the time when I talk to her, She is cooing all the time, and starting to hold her head up. What a wonderful personalilty she has already. Yesterday, I woke up and looked over at her in her bassinet, and she just gave me the biggest smile. It was almost like she was watching me sleep and waiting for me to wake up. It was the cutest thing ever, what a wonderful way to start my day. As opposed to my son waking me up by poking me in my side, saying "wake up, wake up!" I love being a mother, I feel so blessed for everything I have in life. I know I say this all the time in this blog, but Kaylin's situation is a gift. She is so special already, and I hope she will realize what a blessing she is to everyones life. I have no doubt that she will be able to accomplish anything she wants to in life. I think sometimes people forget how fragile life really is, until it is taken from you. We are not in control, even though sometimes it may feel like we are. God only knows what is in store for you, and what blessings are to come. The day I found out about Kaylin, really changed my way of thinking. I'm going to do whats best for my family in every situation, if you don't like it, too bad.  Life is way too short to have negative people in your life. Words can hurt, but only if you let it. Don't let anyone bring you down, stand up for what is important to you, and the rest will fall into place as it should, as God intended. <3