My due date is finally 3 weeks away! I'm very anxious and excited, but also nervous too. I can't wait to meet her and finally get to hold her. My husband and I will finally get more answers about her condition once she is here with us. Finally 4 months of waiting is almost over!!!
In the meantime while waiting.. I have been practicing with Collin (her big brother), with a babydoll. So far so good. We feed the baby together, rock her, change her... He also knows when the baby is crying he is to be quiet. He was so cute with the babydoll... everytime the baby cries, he says "shhhh" very softly. I think at first it will be a big change for him, since he gets all my attention now. But he will adjust just fine. It is just going to take sometime.
Our sweet Kaylin was born with Fibular Hemimelia in both legs. In her right leg she is missing her fibula bone, foot/toe bones, and has a bowed tiba. Her left leg is missing foot/toe bones, and the rest is unknown until she grows. The purpose of this blog is to keep family and friends updated, and allow you to follow this journey with us!
Monday, April 9, 2012
1st news about our baby girl cont.....
After our results from our 1st ultrasound our doctor scheduled a level 2 ultrasound with a specialist that could better determind what was all wrong with our baby. The earliest appointment I could get was 2 weeks later because of the Christmas Holiday... The worst part was, I had to wait after Christmas before I could get more answers..
It was a rough 2 weeks, I cried everyday. I found myself constantly on Google, trying to learn more about her condition. I found this support group on Facebook, called "Fibular hemimelia and Amputation Awareness." It was the most helpful for me. I got to talk to other parents that are going through, what I will be going through in the future. I seen lots of videos and pictures of their children. Just seeing their smiling faces, and how happy they are now, gave me hope. These kids are absoutley amazing, running, climbing, jumping, skiing, skating, etc. Nothing seems to slow them down. I then had a different outlook on the situation. But was still hopeful that at my next ultrasound I would get some good news.
It was finally time for my 2nd ultrasound. We found out that her left leg appears to be normal. But her right leg has a missing fibula bone, severly bowed tiba, and her foot is not fully formed. Other than that, she is one healthy baby so far!
It was a rough 2 weeks, I cried everyday. I found myself constantly on Google, trying to learn more about her condition. I found this support group on Facebook, called "Fibular hemimelia and Amputation Awareness." It was the most helpful for me. I got to talk to other parents that are going through, what I will be going through in the future. I seen lots of videos and pictures of their children. Just seeing their smiling faces, and how happy they are now, gave me hope. These kids are absoutley amazing, running, climbing, jumping, skiing, skating, etc. Nothing seems to slow them down. I then had a different outlook on the situation. But was still hopeful that at my next ultrasound I would get some good news.
It was finally time for my 2nd ultrasound. We found out that her left leg appears to be normal. But her right leg has a missing fibula bone, severly bowed tiba, and her foot is not fully formed. Other than that, she is one healthy baby so far!
1st news about our baby girl...
It was time for our 20 weeks ultrasound. My husband and I were very excited. Is it a boy? or girl? I was for sure it was a girl, because the pregnancy thus far had been relatively easy. As opposed to my first pregnancy (a boy) was extremely difficult for me. I had morning sickness all the time with him.
As we sat in the waiting room for our ultrasound, I felt like something may have been wrong. Something just didn't feel right to me. Then I told myself.. I'm worrying for nothing, there is nothing wrong. I seem to worry about everything. I'm a big worry wort!
Finally after 30 mins in the waiting room it was finally our turn. The tech begin looking at our baby. She showed us the head, her heart, her hands...etc... then she finished the rest of the measurements that she needed before determining the sex of the baby.
After about 10 mins, she finally told us we are having a girl!! It was very exciting considering we already have a 2 yr old boy. She then began looking at the babys face, and printing pics for us. She asked me to roll on my side, so she could get a picture of her feet for us. As she began looking at her feet... she got quiet, I could tell on the expression on her face, that she was puzzled about something. She told me that she couldn't get a good picture of her feet for me. Overall the ultrasound took only 25 mins.
Then they sat us back in the waiting room to wait for the results from my doctor. I began worrying again. What did she mean she couldn't get a picture of her feet?
When we finally got in to talk to our doctor. He started right away reading the results. "Over all everything looked ok... her heart, brain, spine, arms, all of those seem to be developing normally.." I sat there waiting to hear the word "BUT" ...then I heard it. "BUT, there is something wrong with her right leg and foot" He began showing us the ultra images, and presented to us that she is missing the fibula bone in her right leg. He then began to tell me, he didn't think it was anything to worry about. I knew he was just saying that to keep us calm. He told us he was going to send us to a level 2 ultrasound, because in all his practice he has never seen this before.
After leaving the doctors, I pulled out my phone and began searching the web for "missing fibula bone". I found out there was this condition called fibular hemimelia, that some babies were born with. Most of the cases resulted in amputation of the leg for a prothesis.
The ride home was quiet, My husband and I hardly spoke. We were both in shock. As soon as I got home, I walked thru the door, and broke down. I cried, and cried. My husband held me, and told me everything was going to be okay and whatever it was, it wasn't my fault. There are really no words to describe how I felt that day. Why us? One thing I knew for sure was I wasn't in this alone. I have a very supportive husband, who is always there.
As we sat in the waiting room for our ultrasound, I felt like something may have been wrong. Something just didn't feel right to me. Then I told myself.. I'm worrying for nothing, there is nothing wrong. I seem to worry about everything. I'm a big worry wort!
Finally after 30 mins in the waiting room it was finally our turn. The tech begin looking at our baby. She showed us the head, her heart, her hands...etc... then she finished the rest of the measurements that she needed before determining the sex of the baby.
After about 10 mins, she finally told us we are having a girl!! It was very exciting considering we already have a 2 yr old boy. She then began looking at the babys face, and printing pics for us. She asked me to roll on my side, so she could get a picture of her feet for us. As she began looking at her feet... she got quiet, I could tell on the expression on her face, that she was puzzled about something. She told me that she couldn't get a good picture of her feet for me. Overall the ultrasound took only 25 mins.
Then they sat us back in the waiting room to wait for the results from my doctor. I began worrying again. What did she mean she couldn't get a picture of her feet?
When we finally got in to talk to our doctor. He started right away reading the results. "Over all everything looked ok... her heart, brain, spine, arms, all of those seem to be developing normally.." I sat there waiting to hear the word "BUT" ...then I heard it. "BUT, there is something wrong with her right leg and foot" He began showing us the ultra images, and presented to us that she is missing the fibula bone in her right leg. He then began to tell me, he didn't think it was anything to worry about. I knew he was just saying that to keep us calm. He told us he was going to send us to a level 2 ultrasound, because in all his practice he has never seen this before.
After leaving the doctors, I pulled out my phone and began searching the web for "missing fibula bone". I found out there was this condition called fibular hemimelia, that some babies were born with. Most of the cases resulted in amputation of the leg for a prothesis.
The ride home was quiet, My husband and I hardly spoke. We were both in shock. As soon as I got home, I walked thru the door, and broke down. I cried, and cried. My husband held me, and told me everything was going to be okay and whatever it was, it wasn't my fault. There are really no words to describe how I felt that day. Why us? One thing I knew for sure was I wasn't in this alone. I have a very supportive husband, who is always there.
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