Kaylin's First Shriners Appointment

Kaylin had her first Shriners doctor appointment today. I must say I was very impressed. I'm so pleased with our decision to go to Shriners instead of Vandy. The women who escorted us to our room, was very friendly.. They were all very nice there and helpful. This by far was the most information we recieved about Kaylin's little legs. They keep you very involved with everything. We got to help them take X-rays of Kaylin's legs, that was cool. They have a coordnatior for every step you go through. I loved how I was constantly asked.. "do you have any questions?" And boy did I! Anyways when talking with the doctor he told us our options for both legs, and gave us a OFFICAL diagnosis! She was diagnosised with Fibular Hemimelia in both legs. He told us this is a very common limb deficiency. Treatment for her right leg- amputation is higly recommended because she has the most severe case of Fibular Hemimelia. She is missing the entire fibular bone, her tiba is severly bowed, and she is missing lots of foot bones, that give her a nonfunicationable foot. When he told me this it just made it feel more real, hearing the word "amputation". For her left leg-- NO TREATMENT!! very excitied about this! She appears to have a very stable ankle so far.. He did say that it is alittle early to tell if she may need a brace at first to help her walk. But so far looks very promising. I asked him about her left leg.. cause I noticed that it does turn inward alot, he doesn't think it is any big deal, that she will most likely grow out of it.. Anyways overall it was a very successful visit! Also they want us to take her to a localy to get a ultrasound of her kidneys and bladder done.. Apparently children with limb deficiency may also have problems with their kidneys or bladder. Our next visit will be when she is 6 months. And we will get to meet with 2 different families that have children with the same condition. I'm very excited to meet them! Anyways time to get ready to go on vacation! Our family total needs this right now! Love and God Bless Everyone!

Check this out..

This is so neat... special needs dolls...

Our Shriners appointment is drawing near now. We have been very busy this month. Had all kinds of family come in town to meet baby Kaylin. It was good seeing everyone. We are so blessed to have so many supportive family and friends.  Now it's time to get ready for our first visit to Shriners. I'm hoping we will learn alot from this first visit. I will post a quick update on our visit, before we go on vacation!

Here are some interesting speeches I found of Amiee Mullins, she has the same condition as Kaylin :)I definetly will be sharing these with Kaylin, once she is older.

http://www.youtube.com/watch?v=dTwXeZ4GkzI

http://www.youtube.com/watch?v=JQ0iMulicgg&feature=relmfu

                                                                  Kaylin --7 weeks :)

Big brother loves his sissy.

Everyday Collin loves his sister more and more. I was worried he would show alot of jealously towards her, because of all the attention she would be getting. But I must say.. I was totally WRONG! He showed some signs of jealously at the begining, but seems to be gone for now... He is very protective of her, which I must say I love it! He thinks she is HIS baby instead of OUR baby.  He also loves to play with her now. He constantly rubs his nose against hers, and laughs at her everytime she makes a funny face.. not sure where he learned that lol. :) And today they were playing under the covers. He kept talking to her under the covers.. and when I would peek my head in, he would tell me to get out.. It was so cute! Here are a few pics I was able to get while he was playing with her :)

So Happy!!

Look.. they are already plotting against me!

Love it!

One month old!

Kaylin is one month old today! Man how time flies by so fast. Seems like just yesterday I found out I was pregnant with her. Kaylin is a very happy content baby. I love having her in our lives.

Kaylin has her 1st doctors appointment at Shriners this month. I'm very excited, anxious, and nervous all at the same time. I'm so excited to finally get answers about her condition, and find out what kind of treatment is available for her little legs.

My husband and I are very prepared for this visit. Ever since we found out at our 20 week ultrasound about her condition I have never stopped searching for answers. Worst case senario for her right leg- amputation. I'm concerned about her left leg, as she is growing I notice her leg does turn in quite abit. I'm praying they will be able to save her left leg, maybe just minor surgery.

It's easy to talk about it now, after many tears, and researching the outcome. But my heart still aches, somedays. My heart hurts for her, it's too hard not to think about what challanges she is going to have to face. I rather it be me. Somedays I think.. "why us?" and then other days I think.. "why not us?" What better parents are there. We are a very loving, caring, responsible parents. God would have never brought this upon us, if we couldn't handle it. I truly believe this situation is a blessing in disguse.

When I was alittle girl, I would pray to my Lord everynight. But eventually I let my life get in the way of what is most important, my Lord. Ever since I found out about my baby, all I do is pray now. I talk to God everyday, and thank him for this blessing and ask for forgiveness. For anyone who has had something tramatic happen in your life, you know what I'm talking about. You start looking at your life, and making changes for the better.

Anyways, I will keep everyone updated. Hopefully I will find time to post something after her doctor appointment! But no promises, We plan on leaving town for a couple days! So ready for a mini- vacation! Here are some pics of Kaylin taken- one month old!!!

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