Our baby girl is 6 months old. Today she had her 2nd appointment with Shriners. It started as a very nervous and scaring day. And ended into a very relaxing, and heart warming day. My husband and I decided on amputation for her right leg. Doctors seem to agree that this is the best and hardest choice we will ever have to make in our life. We sheduled her surgery, and sheduled a follow up checkup right before her surgery to evaluate one more time. Her left leg, we are going to leave untouch for the moment. In her left leg she has her entire fibula bone!! It is just malformed.. which could cause her problems later on, but it is too early to tell.
The best part of our day today was we got to meet other families that have already been through this journey. First we met a young 10 yr old girl, who has her right leg amputated. She was telling us all the different sports she plays.. basketball (her favorite :) ), soccer, softball, etc. She had so much personality for a 10 yr old. She told us how she loves her leg, especially when wrestling with her dad, she uses it to her advantage :)... Secondly, we met a young lady with a prostheic, who is closer to our age. This young lady is one of the most strong, caring, greatful, independant people I've ever met. She had more confidence in herself than I have in myself. I hope Kaylin will have just as much determination as her. Her and her mother were extremely helpful and answered all my questions, and reassured all my doubts. And did you know there is a prothesic leg were you can wear high heels?? yup, thats right, my baby girl will get to strut in those high heels one day :) This met and greet, was by far the best. Her and her family had so much personality, that I felt comfortable to ask anything.