Kaylin's First Shriners Appointment

Kaylin had her first Shriners doctor appointment today. I must say I was very impressed. I'm so pleased with our decision to go to Shriners instead of Vandy. The women who escorted us to our room, was very friendly.. They were all very nice there and helpful. This by far was the most information we recieved about Kaylin's little legs. They keep you very involved with everything. We got to help them take X-rays of Kaylin's legs, that was cool. They have a coordnatior for every step you go through. I loved how I was constantly asked.. "do you have any questions?" And boy did I! Anyways when talking with the doctor he told us our options for both legs, and gave us a OFFICAL diagnosis! She was diagnosised with Fibular Hemimelia in both legs. He told us this is a very common limb deficiency. Treatment for her right leg- amputation is higly recommended because she has the most severe case of Fibular Hemimelia. She is missing the entire fibular bone, her tiba is severly bowed, and she is missing lots of foot bones, that give her a nonfunicationable foot. When he told me this it just made it feel more real, hearing the word "amputation". For her left leg-- NO TREATMENT!! very excitied about this! She appears to have a very stable ankle so far.. He did say that it is alittle early to tell if she may need a brace at first to help her walk. But so far looks very promising. I asked him about her left leg.. cause I noticed that it does turn inward alot, he doesn't think it is any big deal, that she will most likely grow out of it.. Anyways overall it was a very successful visit! Also they want us to take her to a localy to get a ultrasound of her kidneys and bladder done.. Apparently children with limb deficiency may also have problems with their kidneys or bladder. Our next visit will be when she is 6 months. And we will get to meet with 2 different families that have children with the same condition. I'm very excited to meet them! Anyways time to get ready to go on vacation! Our family total needs this right now! Love and God Bless Everyone!